An Insight into the Participation of Rare Disease Patients in Research
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Key findings of a Rare Barometer Voices survey on the participation of rare disease patients in research
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http://download2.eurordis.org.s3.amazonaws.com/rarebarometer/translatedinfographics/RDReasearch_infographics%20English%20Final.pdf
EURORDIS-Rare Diseases Europe
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 932 rare disease patient organisations from 73 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe.
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World Orphan Drug Congress Europe
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