Share and Protect our Health Data!

Share and Protect our Health Data!

Poster Zone

Information

Rare Barometer survey results on rare disease patients’ preferences on data sharing and protection (January 2020). This summary infographic shows the collective results of the 2,013 respondents from 66 countries and is available in 22 languages.
Link to Poster
http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/rbv/20-01-24%20RB%20Data%20Survey%20Fact%20Sheet_Final.pdf
EURORDIS-Rare Diseases EuropeEURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 932 rare disease patient organisations from 73 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe.

Log in