Patient Mediated Research - This Is Really Different

What happens when you really focus on patients first?  

You build a tool that is really useful for patients, - and for the long term. For example a PHR - a Personal Health Record, that enables patients to collect all of their health information, from all sources (hospitals, family doctor, labs, devices, DNA service providers,...) on their smartphone. You don’t store any data in the cloud - everything is stored “at the edge”, i.e. on the smartphone (with backups). This guarantees not only 100% privacy, but also 100% control by the patient.

Then you add - fully integrated with the PHR - all the tools needed for collecting data for clinical research: eConsent, eCRF, ePRO, drug management, anon/pseudonymisation,...

Along the way, you make sure you normalize the data, you use codified data when available, you support the main standards of health data management (both in care and research settings) and you are compliant with privacy regulations but also FDA and EMA regulations for research.When a patient - entrepreneur is building that platform based on family experience with cancer, is strongly connected to patient advocates and names it mysteriously “Andaman7”...… then you serve patients, clinical research and care with the same platform.

And This Is Really Different.